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Disease Organizations
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Arthritis Organizations
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- American College of Rheumatology
- member
directory, site
map, online
newsletter, Association
of Rheumatology Health Professionals (arhp@rheumatology.org),
online isues of "Arthritis
& Rheumatism", the official journal of ACR, guidelines
for the management of rheumatoid arthritis, (acr@rheumatology.org,
webmaster@rheumatology.org, rheumatology.org)
- Arthritis Canada - provides
links to The Arthritis Society, Canadian Rheumatology Association,
Canadian Arthritis Network, Cochrane Musculoskeletal Group and Arthritis
Health Profession Association
- Arthritis Care (UK)
- This site from the UK defines itself as "a registered charity committed
to: Empowering people to take control of their arthritis, their lives
and their organization." They refer to support groups and educational
resources primarily in the UK. facts
and figures, booklist,
juvenile
arthritis,
- Arthiritis Foundation -
American Juvenile Arthritis
Organization, site
map, online
store,
- Arthritis Foundation of
Victoria Inc. - Australian arthritis organization
- Arthritis Health Profession
Association - health professionals who work in the field of rheumatology
- Arthritis
Self-Management Program (The Arthritis Society) - (dbernaerdt@mb.arthritis.ca)
- Dutch League of Association
of patients with rheumatic disorder
- Canadian Rheumatology Association
- (webmaster@maci.mccaig.ucalgary.ca)
- Canadian Arthritis Network
- info on Candian clinical trials, arthritis disease management, genetics
research (can@arthritis.ca, kforis@mtsinai.on.ca)
- Finnish Rheumatism
Association - support, counseling and rehabilitation in Finland
- Norwegian Rheumatism Association
- (webmaster@rheuma.no, nrf.adm@rheuma.no)
- Swedish Rheumatism
Association (in Swedish)
- The
Arthritis Society - Nova Scotia - (1-902-429-7025 or 1-800-565-2873)
- The Arthritis Society
- site map, (rwatts@arthritis.ca)
- The Cochrane Musculoskeletal
Review Group - a group of arthritis researchers and consumer representatives
that help people make informed decisions about arthritis health care
by preparing, maintaining and promoting reviews of the effects of
health care treatments. links,
consumer reviews
of arthritis treatments (msg@arthritis.ca, info@iwh.on.ca, h.handoll@ed.ac.uk)
- The Danish Organisation for Youth with
Rheumatism (in Danish & English) - (anja@henrikdahlgaard.dk, rommel@get2net.dk,
bgeisler@email.dk)
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| Ankylosing Spondylitis |
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| Behcet's Disease |
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| Chronic Fatigue Syndrome |
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| Fibromyalgia Organizations |
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| Lupus |
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| Lyme Disease |
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| Osteoporosis |
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| Pain |
- American Chronic Pain Association
- links, (ACPA@pacbell.net)
- American Chronic Pain Association - P.O. Box 850, Rocklin, CA 95677,
916/632-0922 (24 hour message), M - F 8:30 - 5 PST, fax 916/632-3208
(they have a strong support network of over 800 chapters throughout
the country)
- North American Chronic
Pain Association of Canada - a self-help organization dedicated
to providing support to people in chronic pain (nacpac@sympatico.ca)
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| Psoriasis |
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| Sarcoidosis |
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| Scleroderma |
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| Sjogren's Syndrome |
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| Miscellaneous Organizations |
- AARP
- American Association of Retired People (1-800-424-3410, member@aarp.org,
aarp.org)
- American Academy of Orthopaedic Surgeons
- (webhelp@aaos.org, member@aaos.org, aaos.org)
- American Association of Hip and Knee
Surgeons - links,
doctor locator,
(Julie Kahlfeldt Van Selow, vanselow@aaos.org, aahks.org)
- American Board of Orthopaedic Surgery
- American Medical Association
- Academic Orthopaedic Society
- faculty and chairpersons of medical school departments of orthopaedic
surgery.
- Bone and Joint Decade
(bjd@ort.lu.se)
- CARF - The Rehabilitation Accreditation
Commission - a private, not-for-profit organization that accredits
programs and services in Adult Day Services, Assisted Living, Behavioral
Health, Employment and Community Services, and Medical Rehabilitation.
(webmaster@carf.org)
- Ehlers Danlos National Foundation
(USA) - educational information and resources including access
to a newsletter and support groups in the field of connective tissue
disorders (EDNFBoard@aol.com)
- Ehlers Danlos Syndrome UK
Support Group - A separate entity from the EDNF (above), this
support group provides information for ordering books from the UK
support group.
- International Still's Disease
Foundation Referred to as "the Major site on Still's disease"
by the Still's Disease Home Page (below). index,
best rheumatology
hospitals, links,
- Journal of Bone and Joint Surgeons
- links
- Kids on the Block, Inc. 9385-C Gerwig Lane Columbia, MD 21046 410/290-9095
800/368-KIDS (5437) Kids on the Block, Inc., is an educational program
that uses puppets to show how JRA can affect children site
- Multiple Epiphyseal
Dysplasia - articles
and info, links,
- Myositis Association of America
- information and support services for people with inflammatory myopathies
(dermatomyositis, polymyositis, inclusion body myositis and juvenile
myositis), site map,
newsletter,
- National Association for the Relief
of Paget's Disease (UK) - treatments,
local groups, links,
(director@paget.org.uk)
- National Jewish Medical
and Research Center
- National Association of Orthopaedic
Nurses
- National Marfan Foundation -
(staff@marfan.org)
- National Rehabilitation Information
Center - (dwendling@kra.com)
- Orthopaedic Research Society -
links, mailing
list (ors@aaos.org)
- Reflex Sympathetic Dystrophy Syndrome
Association of America - (jwbroatch@aol.com)
- Self Help for Repetitive Strain
Injury in the UK - Repetitive Strain Injury is a term covering
a variety of work-related injuries to the muscles, nerves, and tendons
(examples include tendonitis and carpal tunnel syndrome), mailing
list, articles,
resources, links,
book list,
- Still's
Disease Home Page - A small site for those suffering from Still's
disease which includes a message board and mailing list.
- The Hip Society
- The Knee Society - (vanselow@aaos.org)
- Wegener's Granulomatosis Support
Group - Wegener's facts,
medical centers (wgsg@wgsg.org)
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| University Arthritis Centers |
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